Slowly I lost all of my body hair. It was devastating - and I worry now about my daughter and if I will pass it on to her. She has such long and beautiful hair, I just don't want to see her go through that.
I don't find that it limits my activities or abilities much, but the wigs are uncomfortable. They're hot and they don't breathe. As a nurse, when I'm moving around a lot, it definitely isn't comfortable. If I'm in the pool, I just make sure I don't get my hair wet. I've learned to adjust.
I recently went through a divorce, and this is the first time that I've dated in a very long time. I haven't had to really think about talking to someone about it in a while, so that has brought a lot of the emotions tied to my alopecia back up to the surface.
I lost my mom in 2016. It was the hardest year of my life. I was sitting next to her when she passed away. She was wearing this ring, and I get to keep it now. It's like I get to carry a piece of her with me. Losing her has definitely shifted a lot of things into perspective in my life.
If I could, I would go back in time and tell my 20-something-year-old-self that youth is wasted on the young. I would tell myself not to wait so long to accept who I am and to love my body. I would tell myself that hair doesn't matter as much as I let myself believe it did.
I would also tell myself how important it is that people know that you love them. I would tell myself to never let a day pass without telling my loved ones how much I care about them, and how much they mean to me.